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9.  If you need help, ask for it.

10.  This is very important. Ask someone to be an advocate for you. Moreover, it is important that you be your own advocate also. The purpose of having an advocate is to help you with all these events and to communicate with your health care team about questions you and your advocate have, prescriptions and their interactions, scheduling appointments, health care cost etc.

11.  Hang in there and fight. It is worth it!